New York Myotonic Dystrophy Center

New York Myotonic Dystrophy Center (NY DM Center) serves as a hub for academic, clinical, and industrial collaborative partnerships to increase research, educational, and clinical opportunities in myotonic dystrophy. Myotonic dystrophy (DM) is the most common cause of adult muscular dystrophy and has a surprisingly high prevalence in New York State, of approximately one in 2,100 people. The RNA Institute was awarded seed funding from The Marigold Foundation to help develop a Center for Myotonic Dystrophy.

​

The NY DM center is created with a vision to address the needs of DM patients by DM researchers from the RNA Institute along with other colleagues across New York State. The center aims to serve as an internationally recognized research and training hub for scientific discovery and therapeutic development in DM. The Center will provide an important resource for building collaborative interdisciplinary efforts in basic science, clinical practice, patient advocacy, industry participation, and policy development. The goal is to harness resources to lead the Nation in research, education, and clinical outcomes for myotonic dystrophy.